News

OCV Valid Eye Floater Questionnaire – Pilot: Phase 2

One Clear Vision is the leading English-speaking charity for sufferers of Degenerative Vitreous Syndrome (severe eye floaters) in the world and we have an international remit. One of our key aims is to promote medical research into effective management and treatment techniques for the condition.

Last year, during a consultation exercise with patients, carers and eye health professionals, the requirement was identified for diagnostic tools be developed for assessing the vitreous and eye floaters.

The vitreous needs to be invisible so it is notoriously difficult to assess using the standard diagnostic methods such as manual slit lamp examination and scans. Meanwhile existing test charts and questionnaires do not capture the issues that are pertinent to people with eye floaters. This makes patient assessments during consultations and clinical trials more difficult.

Project overview

One Clear Vision is uniquely placed to work with clinicians and patients to change this situation and improve the prospects for people suffering with this condition. We have commissioned an academic with experience creating patient-reported symptom questionnaires to develop a flagship, psychometrically-valid, patient-reported outcome measure for eye floaters.

Project stage Completed
Conduct initial focus group research tick
Produce the pilot version of the questionnaire and collect 150 responses  tick
Analyse the responses  tick
In light of analyses construct a revised version and collect 200 responses
Repeat statistical analyses and produce the final version
Review relevant research evidence and write-up result for publication

What we need you to do

We need a cross-section of people with eye-floaters, 200 during the second phase, to complete the pilot questionnaire. If you have eye floaters, no matter how mild, please complete the online questionnaire. It can be done online in around 15 [...]

Dan Lewi joins board of trustees as our new Secretary

We’re really pleased to let you know that we have recruited a new trustee Secretary, Dan Lewi.

Dan Lewi holds an MSc in Psychology from Liverpool University and spent his formative years working in the City of London, gaining experience in marketing, new issue funding and eCommerce platforms in the banking industry. In 2011 his eldest daughter was diagnosed with a terminal illness called Tay-Sachs at the age of 15 months. Upon finding that there was no dedicated charity providing support for families affected by this disease he set set-up the Cure & Action for Tay-Sachs (CATS) Foundation with his wife and he now runs the day to day management of this charity.

Under Dan’s leadership The CATS Foundation has gone from strength to strength and provides a variety of services to families. The charity was recently nominated as the patient organisation for a clinical trial into Tay-Sachs using gene therapy and he is actively involved in this ground breaking work. As a small charity Dan has been able to gain experience in a variety of roles and has developed skills in fundraising, grant writing and marketing.

Dan is delighted to be joining a young and vibrant charity like One Clear Vision and believes that the work the charity undertakes has the potential to make a huge impact on many people affected by DVS. He hopes that his experience in running another charity will help One Clear Vision meet is objectives and goals.<

By |June 19th, 2014|News|Comments Off on Dan Lewi joins board of trustees as our new Secretary|

Seeing Spots documentary – Take 2

Nick is now re-funding for a new documentary about eye floaters.

Follow this link for more information:

http://www.indiegogo.com/projects/seeing-spots-a-dvs-documentary–2

By |January 23rd, 2014|News|Comments Off on Seeing Spots documentary – Take 2|

Trustee vacancies

One Clear Vision is the leading English-speaking charity for sufferers of Degenerative Vitreous Syndrome in the world and we have an international remit.

We are seeking to appoint an outstanding Chair and a Charity Secretary to join our board of trustees on a voluntary basis (up to 2 years renewable).

We are at a very exciting and challenging time in the development of the organisation and we are seeking two exceptional individuals who are keen to help us achieve our vision, goals and strategy going forward.

As Chair you will provide effective leadership and management to the board of trustees, enabling them to fulfill their responsibilities for the overall governance and strategic direction of the charity, and ensuring that appropriate decisions are correctly made. You will work in partnership with the chief executive officer and charity secretary to ensure that trustee decisions are acted upon and the charity is managed effectively.

As Secretary you will oversee the compliance with various legislative and regulatory requirements affecting the charity and its activities and ensure that the trustees’ decisions are acted upon; that all decisions made by the trustees are in accordance with the governing document, reflect the objects of the charity, and continue to provide public benefit. You will ensure that effective measures, controls and procedures are put in place, and are appropriate for the charity. As a trustee, you will play a full strategic role in the running of our organisation.

If you are excited by the prospect of working for a pioneering and innovative health organisation and have a strong background in business and management, are methodical and confident and can spare around two to three days a month, we would welcome the opportunity to discuss the role in [...]

By |December 20th, 2013|News|Comments Off on Trustee vacancies|

Feedback on what you think are the important issues for the Seeing Spots documentary

Please take a moment to feedback on what you think are the important issues for the Seeing Spots documentary which will be re-funding soon.

Click this link to complete the survey.

http://goo.gl/gQHdR7

By |December 3rd, 2013|News|Comments Off on Feedback on what you think are the important issues for the Seeing Spots documentary|

Seeing Spots documentary – your opinion counts

Nick will soon be re-funding for the informational documentary “Seeing-Spots”.

He would like to get everyone’s opinion on what exactly should be addressed in the documentary.

Head over to the Facebook group and let him know!

thanks

The One Clear Vision Team

By |September 10th, 2013|News|Comments Off on Seeing Spots documentary – your opinion counts|

Helping each other with lifestyle tips

If you have any thoughts / advice and tips that have helped you cope with the condition day to day we’d love to here from you
By |August 9th, 2013|News|0 Comments|

Support DVS clinical research: Carrots NightWalks

One Clear Vision is teaming up with the UK’s leading eye research charity, Fight for Sight, to raise funds for DVS clinical research. And we really need your help!
By |July 25th, 2013|News|Comments Off on Support DVS clinical research: Carrots NightWalks|